Sunday, May 21, 2017

Life in Puebla!



This was very well written by Kristy, whose husband is having treatment now in Puebla!

It just gives you a glimpse of what life is like in Puebla, Mexico!!

I'm here in Puebla now and wanted to take the time to share for those that are in the process of preparing and packing to come.  Like me, you are reading the lists of others and wondering what you should really need to take vs what not to take.

Let me begin by saying that I was very surprised by how modern Puebla is.  I looked at the little snapshot of restaurants posted by George Goff and for some reason though that maybe there was only 1 Starbucks and how lucky this city was to have something so modern finally come.  haha, what a foolish thought to have.  Please toss out your expectation of "Mexico".

There are many Starbucks in this city and if that doesn't comfort you, there are also Gloria Jean Coffee Shops along with many cool and interesting coffee shops as you get closer to the clinic.  And by cool, I really mean cool.  We sat patio side eating french toast and I was drinking Mimosa's watching very classy and sophisticated Mexican locals practically doing the same.  If you are a coffee snob, then you will survive in Puebla!  Unless you just want to guarantee that you have your special coffee, then don't bother packing it.  You will find a good cuppa right here and a nice experience as well.  There is a Starbucks in the hospital even.  If you are staying in Inspiralta Apartments, then Starbucks is right around the corner as is Gloria Jean Coffee and a fabulous shop, Vainilla Chocolate that sells breakfast, delicious expresso coffees and gluten free, vegan, sugar free and regular delicious desserts and scones.  Are we rethinking Mexico yet?

Groceries - what you need to consider bringing from home.  Nothing.  If you are gluten free, Mega and Walmart have a large supply of gluten free products that I see on the shelves at every grocery store in the States.  I was shocked.  I even found my favorite crackers and jumped for joy right in the store... so many comforts from home.  Both Mega and Walmart carry a large supply of natural and organic products as well. I found GHEE, Coconut Oils a plenty, Braggs Apple Cider Vinegar, Coconut Aminos, Almond milks, Coconut milks, soups, natural juices, and just about everything under the sun to feast on and many of these products are the same from home.  They also have Stevia and natural sugar so don't bother packing that.  And if you are a tea drinker, they have lots and lots and lots of teas to choose from.  Mega even has grass fed organic beef, organic eggs, gluten free bread, cereals, pastas, organic chicken, etc.  Costo is good for organic veggies. All of you organic foodies will survive!

If you are a bit more of a snob (I am) and prefer higher end items, then skip across the street or get a ride to the mall. They have Williams Sonoma that sells all sorts of high end spices, flours, oils, a very nice balsamic glaze ;), pastas, etc.  The Palace department store in the mall also has an organic market that will excite and delight you as well.

If you are a COSTCO or SAMS Club member, bring your cards. They have both stores not far from all of the apartments.  If you are in Inspiralta you can walk to COSTCO easily.  I recommend becoming a member if you are not one already as you can buy a lot of bulk items here that will last you throughout the month without having to keep going to the grocery store, unless you just need to get out of the apartment a bit.

If you are like me and you want to organize and set up living for the month, they even have a Home Depot where you can find many of the suction cup shower caddies.  I didn't check Walmart until yesterday but I imagine they have everything you need to organize with as well.   The bathrooms are small in Inspiralta and if you need more organization, then I recommend shopping at either of those places.  Home Depot is right near Walmart and within easy walking distance of Inspiralta.  Speaking on bathrooms, if you are not in a wheelchair you may get put at Inspirtalta or Aquaducto as Quadra is the only one with a large wheel-in bathroom.  But if you are tall or wide, you may want to consider Quadra as the showers are short and narrow.  They can fit a small shower stool but barely and they do have a wand so you can shower sitting.  Just something to think about if you are taller or wider and prefer more space in the shower.  Otherwise, you will survive!

Walking is SAFE and I recommend it for the caregivers.  Puebla has an amazing walking system with bike trails and walking paths that go all over the city.  Right behind COSTCO near Inspiralta is the public park which is AMAZING! They have running/walking paths, a running track, soccer field, basketball courts, mini golf (yes, have some fun!), an exercise park with equipment you can use, and an all natural restaurant and cafe.  Bring your running/walking clothes and shoes. You wont regret getting out and hitting the trails!

And there is even more enjoyment for the foodies.  George Goss was correct in saying that some of the best restaurants are here in Puebla.  Sonoro's is a fine dining steak house near the clinic that serves probably the best steak I've ever had.  It will set you back about $50-70 US dollars per plate.  The wine list is excellent.  for my wine snobs, try the Mexican wine at the higher end restaurants.  You will greatly enjoy them!  I was quite surprised. Restaurant La Noria is a nicer restaurant that serves a good mix of foods and local flavors.  It is lovely sitting outside.  Its not as expensive as Sonoro's but you can get a good steak there as well if you like.  There are so many restaurants for you to enjoy that are not worriesome.  The ice is bagged and not contaminated so feel free to get ice at these places. They will serve you bottled water if you also prefer.  I personally stayed away from salads just to be on the safe side but have not been sick since coming here and I have a very sensitive stomach.  Enjoy all you foodies! If you are not a foodie and want to stick to more common places, IHOP, PF Changs, VIPS, McDonalds, Dominos or Papa Johns Pizza, or the food court in the mall can satisfy your cravings.  The food court also has a HOOTERS if you are dying for wings or a sports bar.

Speaking of the mall.... oh my goodness...  the shopping is incredible.  Prada, Coach, Michael Kors, Burburry, Emilo Zenga, and so many other high end names that I could not count.  They also have all of the makeup you ladies have back home in your same deparment stores and even a Bobbie Brown makeup store.  There is a botanical store for more products if you prefer more natural items.  And if you love to gamble, there is a casino in the mall with all the typical slots and card games you have back home.  The mall even has an IMAX theater if you want to catch your favorite movie in spanish.
This is not a mall for the typical Mexican population.  What you will find in Puebla is a lot of high end shopping, dining, etc. (even a Jag, Porshe and Audi car dealerships) that cater to the richer population, which you guessed it... are probably cartel Narco related...but don't let that scare you.  Word on the street is that Puebla is a safe city and is kept that way for their families to also enjoy freedom of taking advantage of such nicities.  Don't let the armed guards at the mall scare you.  Their AK47s with laser sights are impressive but they keep petty theives from getting the wrong idea.  We have crime at our malls in Atlanta and could use such show of force.

Now that you realized you will survive in this "Mexican" city (I'm still laughing at myself for thinking so poorly about coming to Mexico for treatment), let me share with you what I wish I would have packed and left at home.

- themoeter (don't bring, they loan you one that scans the forehead)
- hand sanitizer (unless you want special sanitizer from Young Living oils or another natural brand, they provide you with some or the grocery stores carry plenty)
- fruit and veggie wash (leave at home, Walmart carries it)
- natural soap (leave at home, buy it from Botanica in the mall!)
- organic gluten free snacks (leave at home, you will be shocked at what they have here so safe the suitcase space for your walking clothes)
- organic shampoos and conditioners (unless you have a special brand you prefer, you can buy this at Botanica in the mall as well)
- essential oils (unless you have a brand you prefer, the mall sells them!)
- peppermint tea (you can buy organic peppermint tea  here)
-organic spices (the grocery stores carry them)

 What I wish I would have brought as suggested by others that I ignored:

- black out curtains.  I have not shopped Walmart enough to say that they cant be bought here but those I wish we would have purchased.  Inspirtalta is all windows and the thin (see through so don't change in front of them) curtains do not block out any light.  It's just as bright at night as it is in the day, so it seems.  I did bring an eye mask but I don't sleep well with something on my face.

- ear plugs.  There is a lot of noise living in apartments and with the windows always open (no air conditioner) you hear much of the city sound, your neighbors TV or barking dogs, parties in the distance or the nightclubs, or the constant banging with all of the construction going on.

- fragrance free fabric softner. Yes, I still use fabric softner but due to allergies, I cannot use anything with a heavy scent so I buy all fragrance free back home.  Walmart may carry this item but Mega does not.  They do have Tide Free laundry wash.  Please note that all of the laundry detergents here are obnoxiously scented.

And that is really about it for what I wish I would have brought.  The rest of what I had could have been left at home.  The nurses do a great job of checking blood pressure and temps and the hospitals nearby should you need to go, are actually very nice.  The MRI at the hospital has a 1.5 magnet which is what they use back home for us.  I also highly recommend you get your MRIs in Mexico.  You will save so much money. They are about $200 US a scan.

The clinic, nurses, drivers, doctors, etc. have all exceeded our expectations.
You are going to be just fine coming to Mexico for your care!
You will love it!!

Friday, May 19, 2017

We're Done, and Hair Loss!

                                       Day +7 to Day +9


                  The wonderful, compassionate nurses!! They were awesome!!
     Paco was literally running to us when we needed help! Always with a smile!
My WBC count went from 400(extremely low) to 9,600!! So, that meant we could have our Rituxumab infusion on Wednesday! And, I was out of neutropenia!! Yay! We met with Dr. Ruiz, and he said I did very well with the treatment! He said that my HSCT was successful, and that my MS progression had probably stopped! He asked if I had any changes with my MS. I told him no, not yet. Although, I think my headaches have been better! I used to have a headache everyday! He said it may take up to a year if I was to see any improvement!
But, the goal was to stop progression! Hopefully that has happened!!
 Clinic Ruiz gifted us with a box of oils, soaps, and lip gloss!! They're very thoughtful!
                             A picture of group 3, my new British friends!!
 As many of you know, I started losing my hair! By Thursday I knew it was time! It was a very emotional day for me! I thought I was ready, but it's so hard when it comes to shaving your head! After much turmoil, crying, and encouragement from all of you, my barber-in-chief, Dave, shaved my head!! It was time.
                               This is just some of my hair that had fallen out!
                 
                               So Dave started shaving it when I was ready! This was the start.        Being you have been with me on this journey, I decidedto share these pictures that show the good, the bad, and the ugly! Actually, my scalp didn't hurt as bad after I had it shaved!




                   He wanted to have some fun with it, so he gave me a little mohawk!
                                        The final result! It feels so weird😕
Today, Friday, we had a party up on the roof with everyone in our group! 15 in all! All of our drivers were there, also!
It was so fun to see everyone and we laughed a lot!!
               This is our Warriors group 2!! We've been through a lot together!
Patty from Canada, Sarah from Liverpool, UK, Steiner from Norway, and me from USA!

                               Our awesome carers, who worked so very hard!! Xavier, our driver and friend!! He would do anything for us, and always with a smile😀😀

We're finally done!! We'll be friends forever!

Much love to everyone who was involved in our care!!
I'm so glad we came to Puebla, Mexico💕💕

I want to thank God, who is always there for me! Thank you to all of my friends, family and supporters! Without you, this wouldn't have been possible!!
Now, the hard work begins, trying to get stronger and to heal!

This was sent by one of my friends today!
One of my favorite verses! Thanks Lisa:

“Do you not know? Have you not heard? The Lord is the everlasting God, the Creator of the ends of the earth. He will not grow tired or weary, and his understanding no one can fathom. He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.”
‭‭Isaiah‬ ‭40:28-31‬ ‭

The Lord is with you and He is all the strength you need! Trust in Him! 
Praying for you everyday! So excited for you to come home tomorrow!
Love you!
Lisa

Amen!!
Thanks Lisa for your encouragement!!
I can't wait to come home tomorrow!!
Love you,
Kim💕💕

Love to you all and God Bless You!
Kim💖💖💖

Tuesday, May 16, 2017

Day +6 to Day +8


                 

              Sorry I didn't post yesterday! Yesterday, Monday, was Day +8!
                                     We met with Dr. Ruiz Sr. at the clinic!
I was given my lab results! I have good news!
He said I went from a WBC of 200, to a WBC of 9,600!!! I'm out of neutropenia!
Yay😍!!!
He said that I did well and that the stem cell transplant was successful! He asked if I have noticed any changes yet, and I said I hadn't. He told me that I may notice changes in 9-12 months if I'm going to. Keep praying that I'll see changes!

He said I'm cleared to have the Rituxumab infusion, which  I'll have on Wednesday, pending 2 in our group are out of neutropenia! 2 of us were good to go!!

So, I'm out of neutropenia, which means I can go out without a mask, but not in crowded areas. I must wear a mask on the plane and if I'm around sick people.
I have to be careful around Gus, my Goldendoodle!🐕🐕 He can't lay in bed with us or me. He's going to have a hard time understanding this!!

I can't swim in a pool or a lake! Sorry you all in my swimming class! I'll come for coffee!☕ I still must be careful what I eat, Only clean food. No salads or fresh fruit and vegetables. They must be cooked! That's going to be hard for me because I love salads🥗 I can have fruit/vegetables with a hard skin!🍉🍌🍍🥑 I'll be eating a lot of watermelon and cantaloupe!

I continue to lose my hair!😕 I'm unsure  of when to shave it!! It's so hard! I'll let you know when I'll do it!!

I'm feeling pretty good, but last night I had a headache?? Not sure if it was from the Filgrastim injection?? I also had some bone pain. Luckily, I'm done with the injections!!

We are out of isolation, so we may get out and do some sightseeing today!
I'm so thankful to be done with the worst of it!! Thank you for all of your prayers, love, and concern!!

I opened a card with this verse:

"Be strong and of good courage; do not be afraid, nor be dismayed, for the Lord your God is with you wherever you go." Joshua 1:9

I know that God has been with me through it all! To Him be the glory!🙏

Thanks Amy for this encouragement and truth!!
I can't believe we come home in 4 days!!

Love you all for being with me in thoughts and prayers!👆

We'll see you soon! We love and miss you Mom and Dad, Alex, Zach, Meghan, and Eva💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖

Much love,
Kim & Dave

Friday, May 12, 2017

Isolation and Mom's Birthday&Mother's Day!


                                                 Day +3 to Day +5


Today is Day +5. We remain in isolation😷😷😷 It's Friday today!! I can't believe we come home in a little over a week! Not too much happening. We may go out for a little walk around the neighborhood! We have to wear masks, though😷😷😷
We skyped Alex and Gus last night🐕🐕I miss them so much! I'm getting homesick!
Today we may try and Skype Zach, Meghan, and Eva!

I feel good!! More strands of hair continue to fall out! I'm trying to prepare myself for this! Losing your hair is not the end of the world! Luckily, hair grows back! Besides, I have a lot of cute hats from my friends, that I can wear!😀

I've been eating the neutropenic food! Also, Dave has been cooking things I can eat! It's like emergency food from the Wise Company. Just add hot water! They're not too bad. They don't want you eating anything that may give you an infection or make you sick!


 I've been praying and contemplating how MS has changed my life! I really hope and pray that the MS symptoms will improve!
 A nurse or doctor comes everyday to monitor my vitals, check to see how I'm doing, and to give a Filgrastim injection. This will help my neutropenia recover faster!
                            The nurse giving me an injection! She's really nice!!

                        It was Mother's Mexican Day on May 10th🌹🌸💐🌼🌺🌷🇨🇮

It was my beautiful Mom's Birthday on May 3rd! I missed the party they had for her.
I wish I could've been there! I miss and love her so much!! Happy Birthday Momma!                                                                                                                                                                                                                                      My beautiful Mom and sister, Melanie!!

My aunt LaVonne and mom(sisters)!

I will also miss Mother's Day which is May 14th. We'll have to celebrate it when we get home!!
                 My beautiful sister and Maddie, her gorgeous daughter!!

Hope you'll have a great day! The cards and Bible verses have been so encouraging!!
It helps just knowing you are praying and that you care💕💕 I've opened a card everyday! Thank you for your love💕

My verse today: In the day when I cried out, You answered me. And made me bold with STRENGTH in my soul. Psalm 138:3.
Thanks Tracy!!

Tuesday, May 9, 2017

Isolation! 7-10 days!

                                               Day +2

We are in isolation starting yesterday. I now must eat a neutropenic, clean diet, as I'm at greater risk for infection. Xavier brought my bucket of food yesterday. I'll eat it. It's not too bad. Basically, you just add hot water to the meals! Dave can also cook if he makes proper things.
                                           Xavier delivering the bucket of food!!

Today the doctors made house calls to take our vitals, draw our blood, and to give another Filgrastim injection. We also get to go to the clinic to have a hematology consult. We met with the doctors, and found out our lab results.🏥

I'm in neutropenia!! They said all of my numbers are going down! My WBC count I think was 3,200. My platelets are low. This is to be expected! They will continue to go down.

We will have another blood draw and go to the clinic on Thursday. In the meantime, we're in isolation. We can go outside, but must wear masks and avoid crowded areas!
We're just reading, sleeping, watching movies, writing on the computer. We do have a little deck off our living room which has spectacular views and sunsets with the volcano🌋

I'm thankful that we only have to drink 2 liters per day, instead of 3! That means I'm not up every hour peeing! Haha! These things become important! Like a good night's sleep!😴

The good news is that I feel good, I have a good appetite, and I haven't lost my hair yet!! 

Love you mom and dad!

Monday, May 8, 2017

Day 0!! My Stem Cell Birthday! May 7th, 2017!

                                            Day 0!!

Sorry I didn't post yesterday, Day 0,  my stem cell birthday!!
Yesterday was an emotional, great day! Seeing my 309 million stem cells infused back into my body, gives me hope  that my MS has stopped progressing!!

I have so many people to thank from Clinica Ruiz! Their care and compassion has been outstanding!
The doctors, nurses, receptionists, all have taken such great care of us!🎉

The MOSC(Medical Outpatient Services Company) Xavier, in particular, has gone above and beyond his job for us!! He has been our driver,  picking us up at the airport, making sure we get to the Clinic on time,  transportation to the hospital for our PICC line placement, and for our consultations with neurologist/cardiologist, a  handyman, our interpreter, tour guide, and most of all our friend!! He is a truly compassionate, nice guy!! We couldn't have done this without him!! We love you Xavier💕

Our maid, Sina, who comes to our apartment almost everyday! She has done a superb job keeping our apartment so nice and clean! I want to take her home with me!!😀

I thank all of the patients here whom have gone through this whole experience with us! They have become like family, and have been a great support! We will be forever connected!
May 7th, 2017, the 4 of us will share our new birthday!! From the UK, Norway, Canada, and USA!

A huge thank you to all of our carers!! They do so much, shopping, cooking, making sure we take our meds, and just a great support!! Thank you Dave, the best hubby, carer anyone could have! I love you😘

And, all of you who have loved, supported, encouraged, and prayed for us! We are so thankful!!

Thank you to our families who have always been here for us! We love you so much!! 💕

                                 May 7th, 2017, my new stem cell birthday!


Our group, the fabulous 4, having our celebration, with a birthday card, cupcakes, and an awesome t-shirt given to us by the Clinica Ruiz!!


Hopefully my new immune system will have stopped the progression of MS, and I will regain some function!! C'mon stem cells!!







I am now in isolation for 7-10 days! I love and miss you all!!

Alex, Zach, Meghan, Eva, and Gus, we love you and miss you!😘
Alex, thanks for taking care of Gus! I know he loves you!🐕

Mom and Dad I think about you everyday! Only 2 more weeks! We love you so much and am praying that you are well! We miss you and will try and call you again!
Kim and Dave💕💕

Saturday, May 6, 2017

Last Chemotherapy Day!

                                          Day -1

I was ready for this day! Our final day of chemotherapy! Yay!! I've been doing very well with the chemotherapy, but you can always get sick!! I'm really tired of drinking and peeing! But, if it helps, I'll do it!

 Thank you God, I breezed through the 5 hour chemo session! I'm so thankful!!
They want you drinking 3 liters per day,which is harder by the end. It helps with flushing out the chemo toxins. So I tried! Also, along with the anti-nausea meds given in your IV, it helped with not being nauseated!I had a slight headache tonight, but I'm not sick!! I hope I sleep better tonight!

       This morning we woke up to the volcano with snow on the top of it! So pretty!! It rained last night, so that's maybe why??
       This was our group yesterday getting our stem cells harvested! The machines are very complicated! The doctors monitor them and you very closely!
                            My stem cells being harvested!
                                   309 million baby!!

We all had 7x the amount that was needed for our body weight! They need 1 million per kg.

So today was a great day!! I feel good, unlike some who have been so sick. My heart goes out to them! The nurse in me wants to help them to feel better!
But, Dr. Ruiz was right there helping to make things better! Bless him! He is so kind and compassionate! He made it happen!

                                                 Dr. Ruiz checking on everyone!

The staff have been excellent! Everyone! We couldn't ask for a better team looking after us! I'm very grateful!!

                 Dr. Priesca will be doing our stem cell transplant tomorrow!!

I'm just going to leave you with a couple of quotes:



So true!! Tomorrow is Day 0 when we get our stem cells back!! It will be our stem cell birthday!! I'll try and post tomorrow!!
Good night!
Love,
Kim💕

Friday, May 5, 2017

Day. Of Stem Cell Harvest!! Also 5 hours of Chemo!

                                    Day -2

Today is a big day! My stem cells are being harvested as I write this! My pretest showed approximately 45 million stem cells. I need 1 million per kg, I weigh 45 kg, but I will probably get more! 45 million is enough according to my body weight, but I'm praying for more!

Being hooked up to this apharesis machine is weird! Seeing you blood leaving your body and then seeing your blood cells being collected into a bag! We can not leave to go to the bathroom. Everyone had to wear or diapers. Fun times !!! No modesty here !!

       This is the apharesis room. Our carers are not allowed in here to be with us !!



                                       Here are my stem cells being collected !!

Doctor Arguelles Ruiz (the big guy) just checked in with us to see how we were doing! He is so kind!!

(Yesterday we got our PICC lines put in at the
Puebla Hospital).
This is for my nurse friends. They made a very big deal of it! Things we did right at the bedside in SICU!! We were admitted to the hospital. I went first! We had a beautiful room! I was taken to the OR, and given an IV.
I don't know what anesthesia was given, but it was gooood!! I didn't feel a thing,! Just slept right through it! Also doctor Lovee who I've named doctor D, or doctor delicious was in the OR with me😍😍 He is so cute! Young enough to be my son! Lol! We've had fun amongst ourselves and with the doctors!!
We have had a lot of good laughs😀 We have to try and make it fun😀

                                         This was after getting  my PICC line!!
                                         You have to eat a liquid diet before going home!

I just finished my stem cell collection !! Yay !!!
We just found out our numbers ...

309 million stem cells !!!! Woohoo😀😀😀😀!


Now onto 5 hours of chemo! Yay. I think ??


Wednesday, May 3, 2017

The calm before the storm!

                                      Day -6 to Day -4

                                         Me and Javier! Pretty flowers!!

Monday was Mexican Labor Day  We didn't do much as most things were closed for the holiday! We skyped with Zach, Meghan, and Eva!! I miss them!! Just getting my 2x/day Filgrastim shots! It's nice that the doctors make house calls!
The shots don't hurt, and I don't have any bone pain yet!:-)

Tuesday Dave walked to the bank. Let's just say it has been a fiasco to get pesos. Our credit card company, Citi Bank , didn't know what they were doing. Dave just kept going around with them on the phone, with them giving him many different stories! Ugh!!! They would not help us,
Luckily we had cash and Javier took us to get pesos.
I felt good today! Clinica Ruiz gifted us with an hour long massage! I went for mine today! It was heavenly, glorious, and so relaxing!! Regina truly has healing hands!
They have treated us so great! I'm so thankful!

Wednesday, Javier took us to Cholula, a historic district in town. A historic Catholic Church built over an Aztecs site. It was high up, so Sarah and I stayed down. Dave and Sarah's mom went to the top! It was a steep climb!! We then went to a fancy restaurant for lunch with authentic Mexican food. It was really good!
I was feeling pretty good! I did have some bone pain in my back and legs, due to the Filgrastim injections. Hopefully the pain means it's working!

                                              The Catholic  Church at Cholula

Today was our last calm day of freedom! I'm so glad we could get out sightseeing!
Puebla is such a beautiful city with beautiful people and nice, warm weather!!



Tomorrow, Thursday, Day -3 will be a long day! We will get our Central PICC line. We have to be at the hospital at 8:00. Fasting for 8 hours.

Today is my mom's birthday! Happy Birthday Mom! I love you so much!! Love, Kim💕